Hosts
Rare Diseases International
Languages
Channels
Awareness Days
Health
Sustainable Development
Moderator: Kelly du Plessis, RDI Council & Rare Diseases South Africa
1. Opening Statement:
• Vytenis Andriukaitis, WHO Special Envoy for UHC
• Gabriela Cuevas Baron, Co-chair of UHC2030 Steering Committee and former Member of Parliament at Mexican Congress
2. The Role of Civil Society in Equitable Global Health Governance
• Member of the UHC2030 CSEM Advisory Group (speaker to be announced)
3. Launch of the RDI Health Equity Statement
• Ritu Jain, DEBRA International and member of RDI Council
4. Learning from other Vulnerable Populations
• Linda Goler Blount, President & CEO of Black Women’s Health Imperative (TBC)
5. Ensuring Inclusion and Participation of PLWRD in National Strategies
• Speaker to be announced
6. Strengthening Care Systems for PLWRD: The Global Rare Disease Community in Action
• Flaminia Macchia, RDI Executive Director
7. Closing Remarks
Hosts
Rare Diseases International